When Sorrows Like Sea Billows Roll...

So, we had the meeting with all the Dr.s today. There was a kidney specialist, two heart specialists and the NICU person in charge (not sure his title) along with our social worker. The kidney Dr. pretty much said that Nehemiah's one kidney that is functioning, is doing good for now, praise God!! But he thinks that sometime in his life, weather in a few months or years, he will almost definitely need dialysis and a kidney transplant. This would be ok news as his kidney is life sustaining for now and may be for years, but there is the heart. To have heart surgery Nehemiah would need a very good functioning kidney and the heart surgery would most likely take that kidney out. The Dr.s aren't taking heart surgery off the table yet. They are willing to continue to watch his kidney and see if the function gets better, as it usually does in infants in the first 6 weeks of life. But if it does not improve, they will take the option of heart surgery off the table as an option as his kidney isn't good enough to sustain heart surgery.If this happens, we will be left with the choice of what to do with Nehemiah's remaining time. Do we go home and wait and try and enjoy every min with our baby? Do we push for surgery anyway? We hope and pray that we do not have to make this decision. We are still hoping and praying fervently that the LORD would allow baby Nehemiah to live many years and that his kidney would be made strong. We know that all these things are in His hands though. We do not know how we will make it though these next few weeks or however long we will be in the intense heat of this trial, but we know that God is good and hears our cries and we have to cling to this!! Thank you all for your continued prayers for us and for our sweet blessing from the LORD.

When peace, like a river, attendeth my way,
When sorrows like sea billows roll;
Whatever my lot, Thou has taught me to say,
It is well, it is well, with my soul.

It is well, with my soul,
It is well, with my soul,
It is well, it is well, with my soul.

Though Satan should buffet, though trials should come,
Let this blest assurance control,
That Christ has regarded my helpless estate,
And hath shed His own blood for my soul.

My sin, oh, the bliss of this glorious thought!
My sin, not in part but the whole,
Is nailed to the cross, and I bear it no more,
Praise the Lord, praise the Lord, O my soul!

For me, be it Christ, be it Christ hence to live:
If Jordan above me shall roll,
No pang shall be mine, for in death as in life
Thou wilt whisper Thy peace to my soul.

But, Lord, ‘tis for Thee, for Thy coming we wait,
The sky, not the grave, is our goal;
Oh trump of the angel! Oh voice of the Lord!
Blessèd hope, blessèd rest of my soul!

And Lord, haste the day when my faith shall be sight,
The clouds be rolled back as a scroll;
The trump shall resound, and the Lord shall descend,
Even so, it is well with my soul

It is well, with my soul,
It is well, with my soul,
It is well, it is well, with my soul.