Monday, December 19, 2011

We will wait on the LORD!

Had a really good day with Nehemiah today. Our parents both came up yesterday and we all enjoyed just watching and being with our sweet boy. It is amazing that with all the Nehemiah faces, all the unknowns, when we are with him, it is just sweet. Life is just good. What a blessing to just get to know our sweet boy. The head Dr. of the NICU has been talking about possibly discharging Nehemiah at the end of the week if he continues to do well with his feedings and his kidney and heart remain stable. It is very exciting and also nerve racking at the same time. They are just waiting on his kidney to see if heart surgery is a possibility for him, so they figure waiting at home is just as good. Nehemiah is on a feeding tube because they upped his feedings so much and it was taking him so long to finish his bottle, that he was actually burning more calories than he was eating! Brad and I learned today how to put in his feeding tube (which is only done once a month). Right now, we are just trying to live day by day, not worrying about the future or trying to figure out the outcome. It is  a struggle for sure, but we know the LORD of all creation sees us and hears our cries as well as the cries of His people, so we will wait confidently for Him to work, as He is working!!
Praises: Nehemiah is tolerating his feedings really well. He is crying when hungry and then producing a lot of stools and urine...YAY urine!!! His oxygen levels in his blood have been very good so he has not needed any extra oxygen.
Prayers: The major issue right now is his creatinine levels in his kidney. They were 2.0 today, they need to be below 1.0 for the doctors to offer us heart surgery as an option. We are praying specifically for his numbers to drop before his little heart gives out!! Please pray for him to continue to tolerate his increase in feedings. He will be up to a normal amount of milk by tomorrow night when they will take out his last IV line. We are also praying for his heart to continue to sustain his little body. So many obstacles, but we serve a God who is able to do ALL things!! We also trust that He knows what is best for us and for Nehemiah, so as we pray and petition without ceasing, we also know that His will WILL be done and that He is good and merciful and wise. We will wait on Him.
"I would have despaired unless I had believed that I would see the goodness of the LORD
         In the land of the living.
Wait for the LORD;
         Be strong and let your heart take courage;
         Yes, wait for the LORD."- Ps.27:13-14

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